MS and RA

Imagine having not one but two incurable chronic illnesses. I donʼt have to imagine it, I live it. I am diagnosed with MS and rheumatoid arthritis, with a tad bit of depression to keep an eye on.

Living with chronic illness can be a challenge, especially when symptoms are often "invisible" and you "don't look sick." It is obvious if someone uses a wheelchair that mobility is an issue. However, fatigue, pain, cognitive issues, blurry vision, and balance issues — these symptoms are not so readily apparent to the outside observer. Sometimes I have to remind myself that these symptoms are every bit as debilitating as the visible ones (at least to me) and it is necessary to take the time to care for myself.

The published literature may imply that it is rare to have both MS and RA. But in my randomly selected online world of friends and acquaintances, I've met several friends who live with both diseases or others who search for information about living with both. I wonder just how uncommon it really is.

The best way to deal with dual diagnosis (co-morbidities) is to become educated about the diseases and their treatments. Learn to listen to your body and respect it. Do not over-do it physically, work within your fatigue and pain levels, allow your body time to recuperate and regenerate on a daily basis.

A nap and an understanding significant other are the best treatments Iʼve found, beyond the medications I take. Gentle stretches, yoga, swimming, exercise bike...these are the activities which make me feel good when I do them regularly.

As patient and encouraging I am with my students, I must give myself the same courtesy. Patience and a positive attitude make the uncertainty just a tad bit easier to live with. Who knows if a relapse will happen next week? I donʼt, but I do know that when the next one comes, I will be prepared to deal with it.